Last updated on: 03/10/2015
1. Contact details
Name of data sourceOptimum Patient Care Research Database
Name under which the data source should be displayed in the inventory (e.g short name if one exists)Optimum Patient Care Research Database (OPCRD)
Name of organisation
1) Department/research groupOptimum Patient care
2) Organisation/affiliationOptimum Patient care
Administrative Contact
Title Mr
Last name Marsh
First name Adam
Address line 1Unit 5-6 The Old Granary
Address line 2Westwick
Address line 3
CityCambridge
PostcodeCB24 3AE
CountryUnited Kingdom
Scientific Contact
Title Dr
Last name Dermot
First name Ryan
Address line 1Unit 5-6 The Old Granary
Address line 2Westwick
Address line 3
CityCambridge
PostcodeCB24 3AE
CountryUnited Kingdom
2. Description/category
Disease/case registry
Routine primary care electronic patient registry
Prospective studies database
3.1 Coverage of licensed medicinal products
Licensed Medicinal Product
Comments
Community / general practice data
3.2 ATC code (5th level)
No
3.3 Other product dictionaries
No
3.4 Recording of indication for use
No
4. Coverage of events
Event
Dictionary
Dictionary details
Adverse events (for pharmacovigilance databases)
Yes
READ Code
Symptoms/signs
Yes
READ Code
Diagnosis in primary care
Yes
READ Code
Specialist diagnosis
Yes
READ Code
Discharge diagnosis
Yes
READ Code
Laboratory values
Yes
READ Code
Death
Yes
READ Code
Procedures
Yes
READ Code
5. Year of establishment
2005
6. Geographical origin of data
EEA/EFTA countries
United Kingdom
7. Demographical extent of data collection
Regional sub-set :
Full electronic medical records for over 550 general practices across the United Kingdom, across all clinical system providers.
8. Age groups
17 years and under [Paediatrics]
preterm newborn infants
term newborn infants (0 to 27 days)
infants and toddlers (28 days to 23 months)
children (2 to 11 years)
adolescents (12 to 17 years)
18 to 45 years
46 to 64 years
65 years and over
65 to 75 years
76 years and over
9. Size of the source/catchment population
64,000,000
10 a. Total (cumulative) number of persons with actual data
2,217,089
10 b. Number of persons with active data collection in past calendar year
1,098,876
11. Possibility to obtain additional information on the patient
a) Clinical information from treating physician?
Yes
b) Questionnaire data from the patient?
Yes
c) Genetic information or samples?
Yes
12. Possibility of links to other sources of data
Yes :
The data can be linked to multiple data sources based on unique hashing algorithms owned by OPC
13. Written policy governing data access
Yes
14. Committee to evaluate requests for data access
Yes
15. Charge/fee for data access
Yes
Special arrangements for academic purposes:
Yes
16. Selected publications of the last 5 calendar years using data from this data source
ReferenceLink to web-publication
Jones RC, Price D, Ryan D, Sims EJ, von Ziegenweidt J, Mascarenhas L, Burden A, Halpin DM, Winter R, Hill S, Kearney M, Holton K, Moger A, Freeman D, Chisholm A, Bateman ED; Respiratory Effectiveness Group. (2014) Opportunities to diagnose chronic obstructive pulmonary disease in routine care in the UK: a retrospective study of a clinical cohort. Lancet Respir Med. 2014 Apr;2(4):267-76. doi: 10.1016/S2213-2600(14)70008-6.
Price D, Kaplan A, Jones R, Freeman D, Burden A, Gould S,
von Ziegenweidt J, Ali M, King C,
Thomas M. (2015) Long-acting muscarinic antagonist use in adults with asthma: real-life
prescribing and outcomes of add-on therapy with tiotropium bromide.
;8:1- 13. doi: 10.2147/JAA.S76639.
Postma DS, Roche N, Colice G, Israel E, Martin RJ, Van Aalderen WM, Grigg J, Burden A, Hillyer EV, Von Ziegenweidt J, Gopala G, Price D (2014) Comparing the effectiveness of small-particle versus large-particle inhaled corticosteroid in COPD. Int J Chrin Obstruct Pulmon Dis. 2014 Oct 17;9:1163-86. doi: 10.2147/COPD.S68289.
Martin RJ, Price D, Roche N, Israel E, van Aalderen WM, Grigg J, Postma DS, Guilbert TW, Hillyer EV, Burden A, von Ziegenweidt J, Colice G. (2014) Cost-effectiveness of initiating extrafine- or standard size-particle inhaled corticosteroid for asthma in two health-care systems: a retrospective matched cohort study. NPJ Prim Care Respir Med. 2014 Oct 9;24:14081. doi: 10.1038/npjpcrm.2014.81.
Price D, West D, Brusselle G, Gruffydd-Jones K, Jones R, Miravitlles M, Rossi A, Hutton C, Ashton VL, Stewart R, Bichel K. (2014) Management of COPD in the UK primary-care setting: an analysis of real-life prescribing patterns Int J Chron Obstruct Pulmon Dis. 2014 Aug
27;9:889-904. doi: 10.2147/COPD.S62750.
