Status: Finalised
First registered on:
14/05/2014
Last updated on:
21/03/2019
1. Study identification
EU PAS Register NumberEUPAS6536
Official titleEstimation of Background Incidence Rates of Guillain-Barré Syndrome in Germany in the years 2007-2009
Study title acronymBIGS
Study typeObservational study
Brief description of the studyGuillain-Barré syndrome (GBS) is currently the most frequent cause of acute flaccid paralysis worldwide and has been suggested to occur as a severe adverse reaction to several vaccines. An estimation of the age- and sex-specific background incidence rates of GBS constitutes a prerequisite for signal evaluation in the context of vaccine safety monitoring as well as for vaccine safety studies which to date is only insufficiently given in Germany.
Referring to a request from the Paul Ehrlich Institute (PEI), which is responsible for the marketing authorization for vaccines in Germany, the main objective of the BIGS-Study was to estimate the background incidence of GBS in Germany in the years 2007-2009. A focus was set on age- and sex-specific incidence rates as well as on geographic (Western vs. Eastern Germany) and seasonal differences.
Was this study requested by a regulator?Yes: Germany
Is the study required by a Risk Management Plan (RMP)?
EU RMP category 3 (required)
Regulatory procedure number (RMP Category 1 and 2 studies only)
Other study registration identification numbers and URLs as applicable
2. Research centres and Investigator details
Coordinating study entity
Centre to which the investigator belongsBIPS GmbH
Department/Research groupClinical Epidemiology
Organisation/affiliationLeibniz Inst. for Prevention Research and Epidem.
Details of (Primary) lead investigator
Title Dr
Last name Schink
First name Tania
Is this study being carried out with the collaboration of a research network?
No
Other centres where this study is being conducted
Not applicable (single centre)
Countries in which this study is being conducted
National study
Germany
3. Study timelines: initial administrative steps, progress reports and final report
PlannedActual
Date when funding contract was signed26/06/201226/06/2012
Start date of data collection01/01/200601/01/2006
Start date of data analysis01/10/201215/10/2013
Date of interim report, if expected
Date of final study report31/03/201315/04/2014
4. Sources of funding
Please provide estimates of the percentage of funding by source for this study
Names(s)Approximate % funding
Pharmaceutical companiesSanofi Pasteur MSD100
Charities
Government body
Research councils
EU funding scheme
5. Contact details for enquiries
Scientific Enquiries
Title Dr
Last name Schink
First name Tania
Address line 1Achterstraße 30
Address line 2
Address line 3
CityBremen
Postcode28359
CountryGermany
Phone number (incl. country code)004942121856865
Alternative phone number
Fax number (incl. country code)
Public Enquiries
Title Dr
Last name Schink
First name Tania
Address line 1Achterstraße 30
Address line 2
Address line 3
CityBremen
Postcode28359
CountryGermany
Phone number (incl. country code)004942121856865
Alternative phone number
Fax number (incl. country code)
6. Study drug(s) information
Not applicable (disease/epidemiology study)
7. Medical conditions to be studied
Medical condition(s)Yes
Guillain-Barre syndrome
8. Population under study
Age
Preterm newborns
Term newborns (0-27 days)
Infants and toddlers (28 days - 23 months)
Children (2 - 11 years)
Adolescents (12 - 17 years)
Adults (18 - 44 years)
Adults (45 - 64 years)
Adults (65 - 74 years)
Adults (75 years and over)
Sex
Male
Female
9. Number of subjects
Estimated total number of subjects13297678
10. Source of data
Is this study being carried out with an established data source?Yes
Data sources registered with ENCePP
Sources of data
Administrative database, e.g. claims database
11. Scope of the study
What is the scope of the study?
Disease epidemiology
Primary scope : Disease epidemiology
12. Main objective(s)
What is the main objective of the study?
The main objective of this study was to estimate the background incidence of GBS in Germany in the years 2007 to 2009. A focus was set on age- and sex-specific incidence rates as well as on geographic (Western vs. Eastern Germany) and seasonal differences.
Are there primary outcomes?Yes
The primary outcome of this study was the occurrence of GBS, defined by inpatient ICD-10-GM codes
Are there secondary outcomes?Yes
In subanalyses different case definitions were applied (e.g. additional consideration of diagnostic procedures).
13. Study design
What is the design of the study?
Cohort study
14. Follow-up of patients
Will patients be followed up?Not applicable/no follow-up
15. Data analysis plan
Please provide a brief summary of the analysis method
A retrospective cohort design was applied to estimate the incidence of GBS in the study population for the years 2007-2009. A case of GBS was considered as incident if a GBS diagnosis-free period of at least 12 months preceded a GBS diagnosis. For the main analysis cases were defined by the ICD-10-GM code G61.0 if this was coded as the main discharge diagnosis in inpatient data. In sub- and sensitivity analyses different case definitions were applied in order to assess the effect of the specificity of case definitions on potential variations in incidence estimates.
Crude as well as standardized incidence rates per 100,000 person years were calculated for the entire study period and for each study year. Results were stratified by sex, age group, region and season.
16. ENCePP seal
Are you requesting the ENCePP seal for this study?
No
17. Full protocol
Not submitted
18. Study Results
Please list the 5 most relevant publications using data from your study
ReferenceLink to web-publication
Hense S, Schink T, Kreisel SH, Marcelon L, Simondon F, Tahden M, Garbe E. Estimation of background incidence rates of Guillain-Barré syndrome in Germany - A retrospective cohort study with electronic healthcare data. Neuroepidemiology. 2014;43(3-4):244-253.http://dx.doi.org/10.1159/000369344
19. Other relevant documents
Conflict(s) of interest of
investigator(s)Not submitted
Composition of Steering Group and
ObserversNot submitted
Other documentsNot
submitted
Signed Code of
Conduct Checklist
Not submitted
Signed Code of Conduct Declaration
Not submitted
Signed Checklist for Study
Protocols
Not submitted
