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Search Database

Please select the type of resource you want to search for:

Centre Network Data source

The search criteria are non-mandatory. Therefore, not specifying any search criteria will return all database entries.

Name of centre:

Country:

Austria
Belgium
Bulgaria
Croatia
Cyprus
Czechia
Denmark
Estonia
European Union
Finland
France
Germany
Greece
Hungary
Iceland
Ireland
Italy
Latvia
Liechtenstein
Lithuania
Luxembourg
Malta
Netherlands
Norway
Poland
Portugal
Romania
Slovakia
Slovenia
Spain
Sweden
Switzerland
United Kingdom (Northern Ireland)

Category:

University based
Hospital based
Government based
Charity or non-profit organisation
For profit organisation

Other

Specify (optional):

Centre resources:

Epidemiologist/Pharmacoepidemiologist
Statistician
Clinician
Clinical Pharmacologist
Pharmacist
Geneticist/Pharmacogeneticist
IT Specialist
Ethics expertise
Legal expertise
Regulatory expertise

Other

Specify (optional):

Therapeutic/disease area(s):

Anaesthesia
Cardiovascular diseases
Congenital Malformations
Devices
Disorders of the central nervous system
Ear, nose and oropharynx disorders
Endocrine disorders
Eye disorders
Gastrointestinal tract
Geriatrics
Gynaecology
Immunological products and vaccines
Immunosuppression
Infectious diseases
Liver disease
Malignant disease
Musculoskeletal and joint diseases
Neonates
Nutrition and blood
Osteoporosis
Paediatrics
Poisoning/Overdose
Pregnancy
Psychiatry
Renal impairment
Respiratory diseases
Skin disorders
Urinary tract disorders

Other

Specify (optional):

Experience with study design(s):

Cohort Study
Case Control Study
Drug Utilisation
Interventional Clinical Trial
Meta-Analysis

Other

Specify (optional):

Experience in direct data collection: Yes No

Available data collection resources:

Capacity to conduct face-to-face interviews - in a clinic
Capacity to conduct face-to-face interviews - in the community
Electronic data capture systems
Interactive voice response systems
Call centre

Experience in secondary research/meta-analysis: Yes No

Experience with data sources:

Hospital Discharge
Longitudinal Prescription Data - US
ALS Register - Amyotrophic Lateral Sclerosis
APEX COPD Registry
ARS
ASTOR - Alport Syndrome
BIFAP
BIKER
BSRBR - Rheumatic and Musculoskeletal conditions
BioReg-Austria
CONQUEST - COPD
COST-GnRH gonadotropin-releasing hormone deficienc
CPRD
Calliope
Caserta database
ChILD-EU - Children Interstitial lung diseases
CureDRPLA Global Patient Registry - DRPLA
DA Germany
DAPI database
DHR
DKCC - Skin Cancer
Danish Registries (access/analysis)
Dravet-SCN1A-PCHD19 Registy
Drugs and Pregnancy Finland
E-HOD
E-IMD
EBMT
ECARUCA - Chromosomal aberrations
ECFSPR - Cystic Fibrosis
ECMN - Mastocytosis
EDMUS - Multiple Sclerosis
EFEMERIS
EHDN - REGISTRY
EHR - Blood disorder
EMBARC
ENCALS - Amyotrophic lateral sclerosis
EPCOT - Blood disorders
ERCUSYN (European Register on Cushing's Syndrome)
ESID Registry
ESPN/ERA-EDTA - Children Renal Replacement Therapy
EU-CHS - Central Hypoventilation Syndromes
EUGINDAT-PIADATABASE - Primary inherited aminoacid
EUHANET - Haemophilia
EUHASS - Blood disorders
EULAR COVAX Registry
EULAR COVID-19 Registry
EUMDS - Myelodysplastic Syndrome
EURAP-Epilepsy and pregnancy
EUROCAT
EUROFEVER
EUROMAC
EUROPAC - Pancreatic diseases and cancer
EUROTRAPS - Autoinflammatory diseases
EUROmediCAT
EUReMS - Multiple Sclerosis
Electronic Medical Records Data (Ambulatory) - US
Emilia Romagna GPs drug prescription
Enroll-HD
EpiChron Cohort
EudraVigilance
Euro WABB - rare genetic disorders
European Porphyria Registry (EPR)
European Prader-Willi syndrome database
European registry of alveolar echinococcosis
EurêClark registry-Systemic Capillary Leak Syndrom
FTLD Register - Frontotemporal lobar degeneration
Fabry registry - Fabry disease
FranceCoag - Haemophilia
GalNet
GePaRD
Gecem inventory
German CF Registry
German MS-Register
Global COL6 Patient Registry
Global FKRP Registry - LGMDR9
HAE
HBV Registry
HDIN - Hepatitis D
HEIS
HES
HIS
HUE-MAN Project - Alpha mannosidosis
Health Search/CSD LPD
HemoNED - Haemophilia
Hepather - Hepatitis B and C
Hospital CDM-US
IADB
ICRS - Cartilage Damage
IMASIS
IMS - Hospital Treatment Insights - UK
IMS LifeLink : Longitudinal Prescription Data - Ja
IMS LifeLink: Dx data - US
IMS LifeLink: Hospital Disease Database - Belgium
IMS LifeLink: Longitudinal Prescription Data - Aus
IMS LifeLink: PharMetrics Plus - US
IMS LifeLink:Longitudinal Prescription Data - Bel
IMS LifeLink:Longitudinal Prescription Data-Spain
IMS MedMap® - Canada
INBC - Blood disorders
INPDR
IPCI
ISAR
Icelandic National Registries
LPUH-Drug Registry
LifeLink EMR FR
LifeLink Health Plan US
Longitudinal Prescription Data - Canada
Longitudinal Prescription Data - Netherlands
Longitudinal Prescription Data(LRx) -France
MIS
MTM & CNM Patient Registry
MediGuard.org
NCRI - Oncology
NCRI_PCRS database
NFZ
NorPD
Norwegian Porphyria Registry
Norwegian wholesaler-based drug statistics
OPCRDA
OPED
Optimum Patient Care Research Database (OPCRD)
PARADIGHM registry - Chronic Hypoparathyroidism
PHARM
PHARMO Data Network
POMME
PPLS-LPUH
PROGNOSIS
PedNet
Pedianet
Pharmachild - Juvenile idiopathic arthritis (JIA)
Prescription Claims Data - Canada
QResearch
R-LIVER rare liver disease registry
RABBIT
RBD Network - Blood disorders and rare diseases
RD-Connect
REHem-AR-SEHOP
ROR Centro - Oncology
ROR Sul - Oncology
RORENO - Oncology
Real Life Data - Big-Pac
Reuma.pt - Rheumatic diseases Portuguese Registry
SAIL databank
SCETIDE - Primary Immune deficiencies
SIDIAP
SMArtCARE
Sylvia Lawry Centre for MS Research Registry
THAOS registry - Transthyretin Amyloidosis
THIN
TREAT-NMD
TREATgermany-AD (Atopic Dermatitis) Registry
The Swedish prescribed drug register
The UK FSHD Patient Registry
The WFH Gene Therapy Registry
UK CF Registry
UK Duchenne and Becker
UK Myotonic Dystrophy Patient Registry
UK National Neonatal Research Database
UK Renal Registry - Renal diseases
UK SMA Patient Registry
UKHCDO - Haemophilia
UKMSR
World Bleeding Disorders Registry
X-ALD - X-linked adrenoleukodystrophy
aHUS Registry
eDRIS
epidEMcat - Multiple sclerosis

Other

Specify (optional):

Available Registry/ies:

Drug Registry/ies
Disease Registry/ies

Other

Specify (optional):

Experience in research collaborations as: Principal Investigator Collaborating Investigator

Interest in research funded:

By pharmaceutical companies
By charities
By government
By research councils
By EU funding schemes

The search criteria are non-mandatory. Therefore, not specifying any search criteria will return all database entries.

Name of network:

Therapeutic/disease area(s):

Anaesthesia
Cardiovascular diseases
Congenital Malformations
Devices
Disorders of the central nervous system
Ear, nose and oropharynx disorders
Endocrine disorders
Eye disorders
Gastrointestinal tract
Geriatrics
Gynaecology
Immunological products and vaccines
Immunosuppression
Infectious diseases
Liver disease
Malignant disease
Musculoskeletal and joint diseases
Neonates
Nutrition and blood
Osteoporosis
Paediatrics
Poisoning/Overdose
Pregnancy
Psychiatry
Renal impairment
Respiratory diseases
Skin disorders
Urinary tract disorders

Other

Specify (optional):

Geographical coverage: National International

European Economic Area (EEA/EFTA)

Austria
Belgium
Bulgaria
Croatia
Cyprus
Czechia
Denmark
Estonia
European Union
Finland
France
Germany
Greece
Hungary
Iceland
Ireland
Italy
Latvia
Liechtenstein
Lithuania
Luxembourg
Malta
Netherlands
Norway
Poland
Portugal
Romania
Slovakia
Slovenia
Spain
Sweden
Switzerland
United Kingdom (Northern Ireland)

Non EEA Europe (excluding Russia & former Soviet Republics)
Russia & former Soviet Republics
Middle East
Asia
North America
Central America & Caribbean
South America
Africa
Australia & Oceania

The search criteria are non-mandatory. Therefore, not specifying any search criteria will return all database entries.

Name of data source:

Type of data source:

Disease/case registry
Spontaneous reporting database
Prescription event monitoring
Administrative database, e.g. claims database
Routine primary care electronic patient registry
Exposure registry
Pharmacy dispensing database
Prospective studies database
Case-control surveillance database
Other

Specify (optional):

Licensed medicinal products:

None
Hospital data
Community / general practice data
OTC
Vaccines
Other

Specify (optional):

ATC Code (5th level): Other dictionaries:

Events:

No events
Adverse events (for pharmacovigilance databases)
Symptoms/signs
Diagnosis in primary care
Specialist diagnosis
Discharge diagnosis
Laboratory values
Death
Procedures
Overdoses
Teratogenic events
Specific event

Specific event:

Geographical origin of data:

European Economic Area (EEA/EFTA)

Austria
Belgium
Bulgaria
Croatia
Cyprus
Czechia
Denmark
Estonia
European Union
Finland
France
Germany
Greece
Hungary
Iceland
Ireland
Italy
Latvia
Liechtenstein
Lithuania
Luxembourg
Malta
Netherlands
Norway
Poland
Portugal
Romania
Slovakia
Slovenia
Spain
Sweden
Switzerland
United Kingdom (Northern Ireland)

Non EEA Europe (excluding Russia & former Soviet Republics)
Russia & former Soviet Republics
Middle East
Asia
North America
Central America & Caribbean
South America
Africa
Australia & Oceania

Data collection: Nation-wide

Regional sub-set

Specify (optional):

Age groups:

17 years and under [Paediatrics]

preterm newborn infants
term newborn infants (0 to 27 days)
infants and toddlers (28 days to 23 months)
children (2 to 11 years)
adolescents (12 to 17 years)

18 to 45 years
46 to 64 years
65 years and over

65 to 75 years
76 years and over

Additional patient information:

Clinical information from treating physician
Questionnaire data from the patient
Genetic information or samples

Linkage to other data sources: Yes

Specify (optional):

Data access charge: Yes

Special arrangements for academic purposes

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About EU PAS Register

For the UK, as from 1.1.2021, EU Law applies only to the territory of Northern Ireland (NI) to the extent foreseen in the Protocol on Ireland/NI

Version: 4.5.3.0