Last updated on: 12/05/2023
1. Contact details
Name of data sourceThe Information System for the Development of Research in Primary Care
Name under which the data source should be displayed in the inventory (e.g short name if one exists)SIDIAP
Name of organisation
1) Department/research groupFundació Institut Universitari per a la Recerca a l'Atenció Primària de Salut Jordi Gol i Gurina (IDIAPJGol)
2) Organisation/affiliationIDIAPJGol
Administrative Contact
Title Dr
Last name Giner-Soriano
First name Maria
Address line 1Gran Via Corts Catalanes, 587
Address line 2
Address line 3
CityBarcelona
Postcode08007
CountrySpain
Scientific Contact
Title Dr
Last name Giner-Soriano
First name Maria
Address line 1Gran Via Corts Catalanes, 587
Address line 2
Address line 3
CityBarcelona
Postcode08007
CountrySpain
Alternative Contact
Title Dr
Last name Talita
First name Duarte-Salles
Address line 1Gran Via Corts Catalanes, 587
Address line 2
Address line 3
CityBarcelona
Postcode08007
CountrySpain
2. Description/category
Routine primary care electronic patient registry
3.1 Coverage of licensed medicinal products
Licensed Medicinal Product
Comments
Community / general practice data
Vaccines
3.2 ATC code (5th level)
Yes
3.3 Other product dictionaries
No
3.4 Recording of indication for use
No
4. Coverage of events
Event
Dictionary
Dictionary details
Diagnosis in primary care
Yes
ICD-10
Discharge diagnosis
Yes
ICD-10
Laboratory values
No
Procedures
Yes
ICD-10
5. Year of establishment
2010
6. Geographical origin of data
EEA/EFTA countries
Spain
7. Demographical extent of data collection
Regional sub-set :
Information relating to Primary Care Practices in Catalonia
8. Age groups
17 years and under [Paediatrics]
18 to 45 years
46 to 64 years
65 years and over
9. Size of the source/catchment population
7,500,000
10 a. Total (cumulative) number of persons with actual data
5,835,000
10 b. Number of persons with active data collection in past calendar year
5,835,000
11. Possibility to obtain additional information on the patient
a) Clinical information from treating physician?
b) Questionnaire data from the patient?
c) Genetic information or samples?
12. Possibility of links to other sources of data
Yes :
The Information System for Research in Primary Care (SIDIAP) captures clinical information of approximately 5,8 million people from Catalonia, Spain (around 80% of the Catalan popu- lation). This information is pseudonymized, originated from different data sources: 1) ECAP (electronic health records in PHC of the Catalan Health Institute); including socio-demographic characteristics, residents in nursing homes/long-term facilities (LTCF), comorbidities registered as International Classification of Disease (ICD)- 10 codes, specialist referrals, clinical parameters, toxic habits, sickness leave, date of death, laboratory test data, and drug prescriptions issued in PHC, registered as chemical classification system (ATC) codes; 2) pharmacy invoice data corresponding to the PHC drug prescriptions; and 3) database of diagnoses at hospital discharge
13. Written policy governing data access
Yes
14. Committee to evaluate requests for data access
Yes
15. Charge/fee for data access
Yes
Special arrangements for academic purposes:
Yes
16. Selected publications of the last 5 calendar years using data from this data source
ReferenceLink to web-publication
Ochoa-Gondar O, Torras-Vives V, de Diego-Cabanes C, Satué Gracia E, Forcadell-Peris MJ, Vila-Córcoles Á. [Epidemiology of pneumococcal pneumonia among middle-aged and older adults in Catalonia, 2017-2018]. Aten Primaria. 2023 Apr; 55(7):102631. doi:10.1016/j.aprim.2023.102631https://doi.org/10.1016/j.aprim.2023.102631
Ahmadizar F, Luxi N, Raethke M, Schmikli S, Riefolo F, Saraswati PW, Bucsa C, Osman A, Liddiard M, Maques FB, Petrelli G, Sonderlichová S, Thurin NH, Villalobos F, Trifirò G, Sturkenboom M; ilmiovaccinoCOVID19 collaborating group. Safety of COVID-19 Vaccines Among the Paediatric Population: Analysis of the European Surveillance Systems and Pivotal Clinical Trials. Drug Saf. 2023 Apr; doi:10.1007/s40264-023-01304-5https://doi.org/10.1007/s40264-023-01304-5
Giner-Soriano M, Prat-Vallverdú O, Ouchi D, Vilaplana-Carnerero C, Morros R. Sex and gender differences in the use of oral anticoagulants for non-valvular atrial fibrillation: A population-based cohort study in primary health care in catalonia. Front Pharmacol. 2023 ; 14:1110036. doi:10.3389/fphar.2023.1110036https://doi.org/10.3389/fphar.2023.1110036
Zamora A, Ramos R, Comas-Cufi M, García-Gil M, Martí-Lluch R, Plana N, Alves-Cabratosa L, Ponjoan A, Rodríguez-Borjabad C, Ibarretxe D, Roman-Degano I, Marrugat J, Elosua R, Martín-Urda A, Masana L. Women with familial hypercholesterolemia phenotype are undertreated and poorly controlled compared to men. Sci Rep. 2023 Jan; 13(1):1492. doi:10.1038/s41598-023-27963-zhttps://doi.org/10.1038/s41598-023-27963-z
Recalde M, Rodríguez C, Burn E, Far M, García D, Carrere-Molina J, Benítez M, Moleras A, Pistillo A, Bolíbar B, Aragón M, Duarte-Salles T. Data Resource Profile: The Information System for Research in Primary Care (SIDIAP). Int J Epidemiol. 2022 Apr; doi:10.1093/ije/dyac068doi:10.1093/ije/dyac068
