Last updated on: 13/06/2018
1. Contact details
This data source is maintained by the following centre registered in the ENCePP inventory of research centres: ARS
Name of data sourceAgenzia Regionale di Sanità della Toscana
Name under which the data source should be displayed in the inventory (e.g short name if one exists)ARS
Name of organisation
1) Department/research groupOsservatorio di Epidemiologia
2) Organisation/affiliationAgenzia regionale di sanità della Toscana (ARS)
Administrative Contact
Title Mr
Last name Lachi
First name Daniele
Address line 1Via Pietro Dazzi 1
Address line 2
Address line 3
CityFlorence
Postcode50141
CountryItaly
Scientific Contact
Title Dr
Last name Gini
First name Rosa
Address line 1Via Pietro Dazzi 1
Address line 250141
Address line 3
CityFlorence
Postcode50141
CountryItaly
2. Description/category
Disease/case registry
Administrative database, e.g. claims database
Pharmacy dispensing database
3.1 Coverage of licensed medicinal products
Licensed Medicinal Product
Comments
Hospital data
Prescription drugs that are dispensed in Tuscany opon specialist prescrition by hospital pharmacies for outpatient/ambulatory use are recorded and can be linked to patient ID.
Total amount of medicinal products used during inpatient care can be retrieved but they are not linkable to patient ID
Community / general practice data
Prescription drugs in charge to the NHS by that are dispensed by a community pharmacy within the Tuscany territory
Vaccines
A partial dataset is available
3.2 ATC code (5th level)
Yes
3.3 Other product dictionaries
italian marketing authorisation code (AIC)
3.4 Recording of indication for use
No
4. Coverage of events
Event
Dictionary
Dictionary details
Symptoms/signs
Yes
ICD9CM (in emergency room)
Discharge diagnosis
Yes
ICD9CM
Death
Yes
ICD9CM
Procedures
Yes
ICD9CM or local Italian coding system
Teratogenic events
Yes
ICD9CM
Specific event
Description: information at birth on newborn(s) and mother; results from pathology tests (both in SNOMED and free text)
Yes
ICD9CM
5. Year of establishment
1996
6. Geographical origin of data
EEA/EFTA countries
Italy
7. Demographical extent of data collection
Regional sub-set :
Tuscany residents
8. Age groups
17 years and under [Paediatrics]
preterm newborn infants
term newborn infants (0 to 27 days)
infants and toddlers (28 days to 23 months)
children (2 to 11 years)
adolescents (12 to 17 years)
18 to 45 years
46 to 64 years
65 years and over
65 to 75 years
76 years and over
9. Size of the source/catchment population
3,700,000
10 a. Total (cumulative) number of persons with actual data
5,000,000
10 b. Number of persons with active data collection in past calendar year
3,700,000
11. Possibility to obtain additional information on the patient
a) Clinical information from treating physician?
Yes
b) Questionnaire data from the patient?
No
c) Genetic information or samples?
No
12. Possibility of links to other sources of data
Yes :
congenital anomalies registry; cancer registry; data sources collected by local health units (eg vaccines, medical clinical records, lab values)
13. Written policy governing data access
Yes
14. Committee to evaluate requests for data access
Yes
15. Charge/fee for data access
No
16. Selected publications of the last 5 calendar years using data from this data source
ReferenceLink to web-publication
