Last updated on: 20/07/2021
1. Contact details
Name of data sourceDanish Registries (access/analysis)
Name under which the data source should be displayed in the inventory (e.g short name if one exists)Danish Registries (access/analysis)
Name of organisation
1) Department/research groupDanish Health Data Board
2) Organisation/affiliationDanish Health Data Board
Administrative Contact
Title Professor
Last name Ehrenstein
First name Vera
Address line 1Olof Palmes Allé 43-45
Address line 2
Address line 3
CityAarhus N
Postcode8200
CountryDenmark
Scientific Contact
Title Professor
Last name Sørensen
First name Henrik Toft
Address line 1Olof Palmes Allé 43-45
Address line 2
Address line 3
CityAarhus N
Postcode8200
CountryDenmark
Alternative Contact
Title Professor
Last name Ehrenstein
First name Vera
Address line 1Olof Palmes Alle 43-45
Address line 2
Address line 3
CityAarhus N
Postcode8200
CountryDenmark
2. Description/category
Disease/case registry
Administrative database, e.g. claims database
Pharmacy dispensing database
Prospective studies database
Validation studies
3.1 Coverage of licensed medicinal products
Licensed Medicinal Product
Comments
Hospital data
Community / general practice data
Vaccines
3.2 ATC code (5th level)
Yes
3.3 Other product dictionaries
Internal procedure code
3.4 Recording of indication for use
No
4. Coverage of events
Event
Dictionary
Dictionary details
Specialist diagnosis
Yes
ICD-10
Discharge diagnosis
Yes
ICD-10
Laboratory values
Yes
IUPAC
Death
Yes
ICD-10
Procedures
Yes
NSCP
Teratogenic events
Yes
ICD-10
Specific event
Description: SNOMED codes for pathology data
Yes
ICD-10
5. Year of establishment
1968
6. Geographical origin of data
EEA/EFTA countries
Denmark
7. Demographical extent of data collection
Nation-wide
8. Age groups
17 years and under [Paediatrics]
preterm newborn infants
term newborn infants (0 to 27 days)
infants and toddlers (28 days to 23 months)
children (2 to 11 years)
adolescents (12 to 17 years)
18 to 45 years
46 to 64 years
65 years and over
65 to 75 years
76 years and over
9. Size of the source/catchment population
5,800,000
10 a. Total (cumulative) number of persons with actual data
9,000,000
10 b. Number of persons with active data collection in past calendar year
5,800,000
11. Possibility to obtain additional information on the patient
a) Clinical information from treating physician?
Yes
b) Questionnaire data from the patient?
Yes
c) Genetic information or samples?
Yes
12. Possibility of links to other sources of data
Yes :
Exact linkage. All researchers access data via Danish Health Data board, which links the data.
13. Written policy governing data access
Yes
14. Committee to evaluate requests for data access
Yes
15. Charge/fee for data access
Yes
Special arrangements for academic purposes:
No
16. Selected publications of the last 5 calendar years using data from this data source
ReferenceLink to web-publication
Østergaard, S. D., Schmidt, M., Horváth-Puhó, E., Thomsen, R. W. & Sørensen, H. T. (2021). Thromboembolism and the Oxford-AstraZeneca COVID-19 vaccine: side-effect or coincidence? Lancet, 397(10283), 1441-1443.https://pubmed.ncbi.nlm.nih.gov/33798498/
Langan SM, Schmidt SA, Wing K, Ehrenstein V, Nicholls SG, Filion KB, Klungel
O, Petersen I, Sorensen HT, Dixon WG, Guttmann A, Harron K, Hemkens LG, Moher D,
Schneeweiss S, Smeeth L, Sturkenboom M, von Elm E, Wang SV, Benchimol EI. The
reporting of studies conducted using observational routinely collected health
data statement for pharmacoepidemiology (RECORD-PE). BMJ. 2018 Nov 14;363:k3532.https://www.ncbi.nlm.nih.gov/pubmed/30429167
Adelborg K, Szepligeti SK, Holland-Bill L, Ehrenstein V, Horvath-Puho E, Henderson VW, et al. Migraine and risk of cardiovascular diseases: Danish population based matched cohort study. BMJ. 2018;360:k96.https://www.ncbi.nlm.nih.gov/pubmed/29386181
Svensson E, Baggesen LM, Johnsen SP, Pedersen L, Nørrelund H, Buhl ES, Haase
CL, Thomsen RW. Early Glycemic Control and Magnitude of HbA(1c) Reduction Predict
Cardiovascular Events and Mortality: Population-Based Cohort Study of 24,752
Metformin Initiators. Diabetes Care. 2017 Jun;40(6):800-807.https://www.ncbi.nlm.nih.gov/pubmed/28404659
