1. Contact details
Name of data sourceThe Health Improvement Network
Name under which the data source should be displayed in the inventory (e.g short name if one exists)THIN
Name of organisation
1) Department/research groupTHIN
2) Organisation/affiliationCegedim
Administrative Contact
Title Ms
Last name Eteve-Pitsaer
First name Caroline
Address line 1137 Rue d'Aguesseau
Address line 292100 Boulogne-Billancourt
Address line 3
CityBoulogne-Billancourt
Postcode
CountryFrance
Scientific Contact
Title Dr
Last name Renaudat
First name Charlotte
Address line 1137 rue d'aguesseau
Address line 2
Address line 3
CityBoulogne Billancourt
Postcode92100
CountryFrance
Alternative Contact
Title Ms
Last name Eteve-Pitsaer
First name Caroline
Address line 1137 Rue d'Aguesseau
Address line 292100 Boulogne-Billancourt
Address line 3
CityBoulogne-Billancourt
Postcode
CountryFrance
2. Description/category
Routine primary care electronic patient registry
3.1 Coverage of licensed medicinal products
Licensed Medicinal Product
Comments
Hospital data
In France, if products are dispensed in retail pharmacies.
Community / general practice data
OTC
Available if OTC products are prescribed by physicians
Vaccines
3.2 ATC code (5th level)
Yes
3.3 Other product dictionaries
National thesaurus: AMP, AMPP, VMP, INPS for the UK, CIP for France, PZN for Germany, national/internal thesaurus for Romania, National thesaurus for Spain, Italy, Belgium
3.4 Recording of indication for use
Yes
Is a coding dictionary being used? READ in the UK, detailed local thesaurus in France mapped with ICD10, ICD9 in Italy and Spain, ICD10 in Belgium, Germany and Romania
4. Coverage of events
Event
Dictionary
Dictionary details
Adverse events (for pharmacovigilance databases)
Yes
like 3.4
Symptoms/signs
Yes
like 3.4
Diagnosis in primary care
Yes
like 3.4
Specialist diagnosis
Yes
like 3.4
Discharge diagnosis
Yes
like 3.4
Laboratory values
Yes
national reference
Death
Yes
available in the UK, in France, in Spain and in Belgium
Procedures
Yes
national reference
Overdoses
Yes
like 3.4
Teratogenic events
Yes
like 3.4
5. Year of establishment
1994
6. Geographical origin of data
EEA/EFTA countries
Belgium
France
Germany
Italy
Romania
Spain
United Kingdom (Northern Ireland)
7. Demographical extent of data collection
Nation-wide
8. Age groups
17 years and under [Paediatrics]
infants and toddlers (28 days to 23 months)
children (2 to 11 years)
adolescents (12 to 17 years)
18 to 45 years
46 to 64 years
65 years and over
9. Size of the source/catchment population
69,000,000
10 a. Total (cumulative) number of persons with actual data
69,000,000
10 b. Number of persons with active data collection in past calendar year
10,950,000
11. Possibility to obtain additional information on the patient
a) Clinical information from treating physician?
Yes
b) Questionnaire data from the patient?
Yes
c) Genetic information or samples?
No
12. Possibility of links to other sources of data
Yes :
Yes in the UK, possible to link upon regulatory process.
13. Written policy governing data access
Yes
14. Committee to evaluate requests for data access
Yes
15. Charge/fee for data access
Yes
Special arrangements for academic purposes:
Yes