Last updated on: 26/08/2021
1. Contact details
Name of data sourceIPCI (Integrated Primary Care Information)
Name under which the data source should be displayed in the inventory (e.g short name if one exists)IPCI
Name of organisation
1) Department/research groupDepartment of Medical Informatics
2) Organisation/affiliationErasmus University Medical Center
Administrative Contact
Title Mrs
Last name Tineke
First name de Ben
Address line 1Erasmus MC
Address line 2Dep. of Medical Informatics
Address line 3PO BOX 2040
CityRotterdam
Postcode3000 CA
CountryNetherlands
Scientific Contact
Title Dr
Last name Verhamme
First name Katia
Address line 1Erasmus MC
Address line 2Dep. of Medical Informatics
Address line 3PO BOX 2040
CityRotterdam
Postcode3000 CA
CountryNetherlands
2. Description/category
Routine primary care electronic patient registry
3.1 Coverage of licensed medicinal products
Licensed Medicinal Product
Comments
Hospital data
as free text in discharge letters
Community / general practice data
Vaccines
partially
3.2 ATC code (5th level)
Yes
3.3 Other product dictionaries
Z-index (G-standard)
3.4 Recording of indication for use
Yes
Is a coding dictionary being used? ICPC-1
4. Coverage of events
Event
Dictionary
Dictionary details
Symptoms/signs
Yes
ICPC-1
Diagnosis in primary care
Yes
ICPC-1
Discharge diagnosis
No
Laboratory values
Yes
WCIA
Death
No
Procedures
No
5. Year of establishment
1994
6. Geographical origin of data
EEA/EFTA countries
Netherlands
7. Demographical extent of data collection
Nation-wide
8. Age groups
17 years and under [Paediatrics]
preterm newborn infants
term newborn infants (0 to 27 days)
infants and toddlers (28 days to 23 months)
children (2 to 11 years)
adolescents (12 to 17 years)
18 to 45 years
46 to 64 years
65 years and over
65 to 75 years
76 years and over
9. Size of the source/catchment population
1,400,000
10 a. Total (cumulative) number of persons with actual data
2,400,000
10 b. Number of persons with active data collection in past calendar year
1,400,000
11. Possibility to obtain additional information on the patient
a) Clinical information from treating physician?
Yes
b) Questionnaire data from the patient?
No
c) Genetic information or samples?
No
12. Possibility of links to other sources of data
No
13. Written policy governing data access
Yes
14. Committee to evaluate requests for data access
Yes
15. Charge/fee for data access
Yes
Special arrangements for academic purposes:
Yes
16. Selected publications of the last 5 calendar years using data from this data source
ReferenceLink to web-publication
1. Berencsi K, Sami A, Ali MS, Marinier K, Deltour N, Perez-Gutthann S, Pedersen L, Rijnbeek P, Van der Lei J, Lapi F, Simonetti M, Reyes C, Sturkenboom MCJM, Prieto-Alhambra D. Impact of risk minimisation measures on the use of strontium ranelate in Europe: a multi-national cohort study in 5 EU countries by the EU-ADR Alliance. Osteoporosis International. [Article]. 2020;31(4):721-55. doi: 10.1007/s00198-019-05181-6. PubMed PMID: 31696274. Q2. https://pubmed.ncbi.nlm.nih.gov/31696274/
2. Coloma PM, de Ridder M, Bezemer I, Herings RMC, Gini R, Pecchioli S, Scotti L, Rijnbeek P, Mosseveld M, van der Lei J, Trifirò G, Sturkenboom M. Risk of cardiac valvulopathy with use of bisphosphonates: a population-based, multi-country case-control study. Osteoporosis International. [Article]. 2016;27(5):1857-67. doi: 10.1007/s00198-015-3441-2https://pubmed.ncbi.nlm.nih.gov/26694594/
3. Engelkes M, de Ridder MA, Svensson E, Berencsi K, Prieto-Alhambra D, Lapi F, Giaquinto C, Picelli G, Boudiaf N, Albers FC, Cockle SM, Bradford ES, Suruki RY, Brusselle GG, Rijnbeek PR, Sturkenboom MC, Verhamme KM. Multinational cohort study of mortality in patients with asthma and severe asthma. Respiratory Medicine. [Article]. 2020;165. doi: 10.1016/j.rmed.2020.105919https://pubmed.ncbi.nlm.nih.gov/32174450/
4. James G, Collin E, Lawrance M, Mueller A, Podhorna J, Zaremba-Pechmann L, Rijnbeek P, van der Lei J, Avillach P, Pedersen L, Ansell D, Pasqua A, Mosseveld M, Grosdidier S, Gungabissoon U, Egger P, Stewart R, Celis-Morales C, Alexander M, Novak G, Gordon MF. Treatment pathway analysis of newly diagnosed dementia patients in four electronic health record databases in Europe. Social Psychiatry and Psychiatric Epidemiology. [Article]. 2021;56(3):409-16. doi: 10.1007/s00127-020-01872-2https://pubmed.ncbi.nlm.nih.gov/32494994/
5. Xintong Li, Anna Ostropolets, Rupa Makadia, Azza Shaoibi, Gowtham Rao, Anthony G. Sena, Eugenia Martinez-Hernandez, Antonella Delmestri, Katia Verhamme, Peter R Rijnbeek, Talita Duarte-Salles, Marc Suchard, Patrick Ryan, George Hripcsak, Daniel Prieto-Alhambra
Characterizing the incidence of adverse events of special interest for COVID-19 vaccines across eight countries: a multinational network cohort study. medRxiv 2021.03.25.21254315; doi: 10.1101/2021.03.25.21254315. Preprint
https://pubmed.ncbi.nlm.nih.gov/33791732/
