Last updated on: 21/09/2023
1. Contact details
This data source is maintained by the following centre registered in the ENCePP inventory of research centres: IDIAPJGol
Name of data sourceThe Information System for the Development of Research in Primary Care
Name under which the data source should be displayed in the inventory (e.g short name if one exists)SIDIAP
Name of organisation
1) Department/research groupFundació Institut Universitari per a la Recerca a l'Atenció Primària de Salut Jordi Gol i Gurina (IDIAPJGol)
2) Organisation/affiliationIDIAPJGol
Administrative Contact
Title Dr
Last name Giner-Soriano
First name Maria
Address line 1Gran Via Corts Catalanes, 587
Address line 2
Address line 3
CityBarcelona
Postcode08007
CountrySpain
Scientific Contact
Title Dr
Last name Giner-Soriano
First name Maria
Address line 1Gran Via Corts Catalanes, 587
Address line 2
Address line 3
CityBarcelona
Postcode08007
CountrySpain
Alternative Contact
Title Dr
Last name Talita
First name Duarte-Salles
Address line 1Gran Via Corts Catalanes, 587
Address line 2
Address line 3
CityBarcelona
Postcode08007
CountrySpain
2. Description/category
Routine primary care electronic patient registry
3.1 Coverage of licensed medicinal products
Licensed Medicinal Product
Comments
Community / general practice data
Vaccines
3.2 ATC code (5th level)
Yes
3.3 Other product dictionaries
No
3.4 Recording of indication for use
No
4. Coverage of events
Event
Dictionary
Dictionary details
Diagnosis in primary care
Yes
ICD-10
Discharge diagnosis
Yes
ICD-10
Laboratory values
No
Procedures
Yes
ICD-10
5. Year of establishment
2010
6. Geographical origin of data
EEA/EFTA countries
Spain
7. Demographical extent of data collection
Regional sub-set :
Information relating to Primary Care Practices in Catalonia
8. Age groups
17 years and under [Paediatrics]
18 to 45 years
46 to 64 years
65 years and over
9. Size of the source/catchment population
7,500,000
10 a. Total (cumulative) number of persons with actual data
5,835,000
10 b. Number of persons with active data collection in past calendar year
5,835,000
11. Possibility to obtain additional information on the patient
a) Clinical information from treating physician?
b) Questionnaire data from the patient?
c) Genetic information or samples?
12. Possibility of links to other sources of data
Yes :
The Information System for Research in Primary Care (SIDIAP) captures clinical information of approximately 5,8 million people from Catalonia, Spain (around 80% of the Catalan popu- lation). This information is pseudonymized, originated from different data sources: 1) ECAP (electronic health records in PHC of the Catalan Health Institute); including socio-demographic characteristics, residents in nursing homes/long-term facilities (LTCF), comorbidities registered as International Classification of Disease (ICD)- 10 codes, specialist referrals, clinical parameters, toxic habits, sickness leave, date of death, laboratory test data, and drug prescriptions issued in PHC, registered as chemical classification system (ATC) codes; 2) pharmacy invoice data corresponding to the PHC drug prescriptions; and 3) database of diagnoses at hospital discharge
13. Written policy governing data access
Yes
14. Committee to evaluate requests for data access
Yes
15. Charge/fee for data access
Yes
Special arrangements for academic purposes:
Yes
16. Selected publications of the last 5 calendar years using data from this data source
ReferenceLink to web-publication
Maria Giner-Soriano, Dan Ouchi, Roser Vives, Carles Vilaplana-Carnerero, Andrea Molina, Antoni Vallano and
Rosa Morros. Effectiveness and safety of oral anticoagulants for non-valvular atrial fibrillation: a population-based cohort study in Primary Health Care in Catalonia. Frontiers in Pharmacology 2023;14:1237454. https://doi.org/10.3389/fphar.2023.1237454
Lestón Vázquez M, Vilaplana-Carnerero C, Gomez-Lumbreras A, Prat-Vallverdu O, Marsal JR, Vedia Urgell C, Giner-Soriano M, Morros R. Drug exposure during pregnancy in primary care: an algorithm and observational study from SIDIAP database, Catalunya, Spain. BMJ Open 2023;13(8):e071335
doi:10.1136/ bmjopen-2022-071335
Molló À, Vlacho B, Gratacòs M, Mata-Cases M, Rubinat E, Berenguera Ossó A, Cos FX, Franch-Nadal J, Khunti K, Mauricio D; INTEGRA research group. A multicomponent health care intervention is associated with improved glycaemic control in subjects with poorly controlled type 2 diabetes compared with routine care: The INTEGRA study. Diabetes Obes Metab. 2023 https://doi.org/10.1111/dom.15250
Giménez-Pérez G, Viñals C, Mata-Cases M, Vlacho B, Real J, Franch-Nadal J, Ortega E, Mauricio D. Epidemiology of the first-ever cardiovascular event in people with type 1 diabetes: a retrospective cohort population-based study in Catalonia. Cardiovasc Diabetol. 2023 Jul; 22(1):179. https://doi.org/10.1186/s12933-023-01917-1
Recalde M, Rodríguez C, Burn E, Far M, García D, Carrere-Molina J, Benítez M, Moleras A, Pistillo A, Bolíbar B, Aragón M, Duarte-Salles T. Data Resource Profile: The Information System for Research in Primary Care (SIDIAP). Int J Epidemiol. 2022 Apr; doi:10.1093/ije/dyac068doi:10.1093/ije/dyac068
