1. Contact details
Name of network/collaboration (full name) Psonet
Network/collaboration (short name)Psonet
Primary contact point of network/collaboration
1) Department/research groupCentro Studi GISED
2) Organisation/affiliation
Administrative Contact
Title Mrs
Last name Caggese
First name Eugenia
Address line 1Centro Studi GISED
Address line 2PO Matteo Rota, pad. Mazzoleni
Address line 3via Garibaldi, 13/15
CityBergamo
Postcode24122
CountryItaly
Phone number (incl. country code)390352278720
Alternative phone number390352278719
Fax number (incl. country code)390352278673
Scientific Contact
Title Dr
Last name Naldi
First name Luigi
Address line 1Centro Studi GISED
Address line 2PO Matteo Rota, pad. Mazzoleni
Address line 3via Garibaldi, 13/15
CityBergamo
Postcode24122
CountryItaly
Phone number (incl. country code)390352278720
Alternative phone number390352278719
Fax number (incl. country code)390352278673
2. Description
Psonet is a network of population-based registries of systemic treatment for psoriasis in Europe. Twelve registries at different stages of development are associated in Psonet to date in the following countries: Australia, Denmark, France, Germany, Israel, Italy, Portugal, Spain, Sweden, Switzerland, The Netherlands, United Kingdom. An interest in collaborating has been also expressed by representatives of the Lithuanian registry and by a Tunisian group.
Criteria for merging data from the registries have been developed and rules for conducting combined analyses have been established. Deliverables of the Psonet collaboration would include (1) comparative data on treatment strategies for psoriasis in Europe; (2) rapid alerts on newly recognised unexpected events; (3) regular reports on specific issues concerning effectiveness and safety. Collaboration with rheumatologic registries has been envisaged. A link with the European Academy of Dermatology and Venereology has been established.