Last updated on: 09/07/2019
1. Contact details
Name of data sourceDutch Haemophilia Registry
Name under which the data source should be displayed in the inventory (e.g short name if one exists)HemoNED - Haemophilia
Name of organisation
1) Department/research group
2) Organisation/affiliationHemoNED Foundation
Website/homepagehttps://hemoned.nl/ 
Administrative Contact
Title Dr
Last name Goedhart
First name Geertje
Address line 1Leiden University Medical Center
Address line 2Staff Thrombosis and Hemostasis C7-Q 
Address line 3PO Box 9600 
CityLeiden 
Postcode2300 RC 
CountryNetherlands
Email address info@hemoned.nl
Scientific Contact
Title Dr
Last name Van der Meer
First name FJM
Address line 1Leiden University Medical Center
Address line 2Staff Thrombosis and Hemostasis C7-Q 
Address line 3PO Box 9600 
CityLeiden 
Postcode2300 RC 
CountryNetherlands
Email address info@hemoned.nl
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